Donna, Patient

By: Leanne Talbot

Posted on: 6 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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Name: Donna

Age: 56

Neuroendocrine Cancer site(s): Primary = bowel and Secondary = liver

Donna’s Story:

I’m a mum of 2 grown up children who I’m incredibly proud of. I work in the catering industry and have 4 dogs so am always on the go.

Through a routine mammogram in December 2016 I was called back as something showed up on the results. When a biopsy was taken I was told that they expected it was something but it was tiny and they were confident it was treatable because of the size. The test results took longer than expected as this was no ordinary breast tumour.

I had been diagnosed with neuroendocrine cancer and I was “lucky” that a bit had gone into my breast and was detected by the mammogram as I had and still have no symptoms.

When I first saw the consultant I was told I was probably looking at a 5 year diagnosis as I would have had the nets for years. Not the case, they still have only detected the primary in my bowel a tiny one on my liver and the one in my breast was undetectable during my last scan.

I have somatuline autogel 120mg injection every 28 days with no side effects so far!

I feel very luck my cancer was detected early and I can carry on living a ‘normal’ life.

Do you have any useful hints and tips that you would like to share?

Stay positive. A positive mental attitude I believe, has helped me a lot. I also have a fantastic rare cancer nurse that is on the end of a phone for any questions she really is my rock! My family are also truly amazing my kids and my poor partner who has to look at my bare behind every 28 days without him life wouldn’t be so peachy!!!

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Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

Do you have a story to share?

Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.

If you have a story to share, we would love to hear from you.

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Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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