Martin, Patient

By: Leanne Talbot

Posted on: 6 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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Hello, my name is Martin Brown, I am 55 years old, married to Wendy and we have 2 daughters, Emma (27) and Lauren (25), and a blind old Jack Russell, Stella, and Reggie the cat.

In January 2017, I was unexpectedly diagnosed with neuroendocrine cancer, the primary being in my pancreas, secondary in my liver.  I had been suffering from stomach aches for some time and had lost weight but we all thought it was a reoccurrence of a hernia. We never thought it would be cancer. 

Being told that this cancer was not curable but could be treated and managed was hard to take. The shock of this revelation hit me and my family hard and in the early days it was difficult to accept and take it all on board. This is where NCUK was so helpful. The website was full of really useful information about this relatively unknown cancer, and it was explained in plain easy-to-understand English. At the time there was a lot of medical jargon to take in, and this website was a blessing to help unpack the information and made me feel a little less overwhelmed.  

So far, my story has been one mainly of positivity.  My NET is “non-functional” and I am fortunate to be currently fit and well.  Dr Seb Cummins at the Royal Surrey County Hospital, Guildford is my consultant and I cannot fault the level of care, compassion and treatment that I have received.  Initially, I was told surgery was not an option as I had too many tumours on my liver (grades 2 & 3),  but after 2 courses of chemotherapy, these shrunk considerably and I was able to have 2 operations within 6 weeks of each other to remove them successfully.  Last year, I needed more chemo as 2 further tumours had reappeared, but my op was cancelled with a day’s notice when the MRI showed the tumours had disappeared!  However, a year later, these likely residual tumours have reappeared, and I am due to have surgery in September to remove them.

Although the last 3 years has been an emotional rollercoaster for me and my family, with the success of the previous chemo treatment and operations, my oncologist said that we were “kicking the can further down the road”. I will continue to give that can as big a kick as possible! 

In October, I was supposed to be taking part in an extreme off-road 50-mile South Downs charity cycle challenge (which had been moved from May due to Covid).  However, due to my impending op, I can’t now participate.  So….. I now plan to do the challenge before my op just with my bike buddy Stuart. We plan to ride the full 50 miles and keep to the original route as much as possible.

We will be attempting this tough challenge (elevation – 5,010ft / 1,527m = lots and lots of hills!!) on Saturday, 12th September to raise money for NCUK. 
https://www.justgiving.com/fundraising/martin-wendy-brown

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

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If you have a story to share, we would love to hear from you.

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We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

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A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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