Marion, NCUK Trustee

By: Neuroendocrine Cancer UK

Posted on: 6 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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I became a Trustee of the then NET Patient Foundation (now Neuroendocrine Cancer UK) in 2012 because I was keen to support this charity which was a great help to me following my diagnosis of a mid-gut neuroendocrine cancer with liver metastasis in 2011. I spent all my working life in the field of education, initially in Further Education and then transferring into Higher Education with the Open University (at Oxford and Milton Keynes) and subsequently moving to the University of Southampton as a senior manager. I am now retired and enjoy gardening, walking, studying geology and travelling when possible. As a Trustee I feel it is a great privilege to be a part of the NCUK team. Although we are a small charity, the staff work very hard to improve awareness, increase support structures, improve healthcare education in this medical area, raise vital funds for research and be a strong voice for all in the Neuroendocrine Cancer community.

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

Do you have a story to share?

Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.

If you have a story to share, we would love to hear from you.

Share your story
Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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