Richard, Patient

By: Leanne Talbot

Posted on: 6 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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Hi my name is Richard. I have 4 kids and live in Essex. Five years ago I was diagnosed with a gastric neuroendocrine tumour at the age 31. With no obvious symptoms, this emotional roller coaster started with a routine gastroscopy to check the effectiveness of my stomach acid medication.

Bouncing between my GP and local hospital. I was told it might be cancer then told it wasn’t cancer, but luckily I was referred to a NET Centre of Excellence which is where I received my first clarification that I did, in fact, have cancer.
I vividly remember the feelings of being told it was then wasn’t cancer, extreme fear then relief. Then the fear back again when it was confirmed at The Royal Free Hospital.
I believe it is so important to raise awareness of this rare cancer as many cases go undiagnosed or misdiagnosed for long periods of time and is why I am pleased to share my story with you.
4 years on from surgery and many tests later I am happy and doing well. I now help facilitate my local Natter  group for people with neuroendocrine cancer as my way of helping support those struggling with this disease and a way of saying thank you to NCUK to whom I owe my life.
For anyone who has suspected neuroendocrine cancer or awaiting diagnoses the best advise I could give would be to search out support from NCUK and their wealth of knowledge.

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

Do you have a story to share?

Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.

If you have a story to share, we would love to hear from you.

Share your story
Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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