Ros, Patient & NCUK Trustee

By: Leanne Talbot

Posted on: 6 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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At the time of my diagnosis almost 10 years ago, I was a busy solicitor working full time and commuting between my home in Newbury and my firm’s offices in London and Swindon.

It was an immense shock to find that I had a life threatening/limiting disease, and hugely stressful that there seemed to be so little information available to the patient compared to other cancers.

I was so grateful to discover Neuroendocrine Cancer UK (formerly The NET Patient Foundation ) website and forum, both of which gave me far more information than was given to me at the time by the medical profession.

After a fairly lengthy period of treatment, I was delighted to have the opportunity to become a Trustee of the charity where I can use my legal skills to help support the work of Cathy and her fantastic team.

I stopped working as a solicitor in 2013, and in pre pandemic times enjoyed volunteering for various local charities. I look forward to resuming those activities in due course.

10 years on from a fairly bleak diagnosis, I have ups and downs with my health, but am broadly well, and enjoy cycling and walking in the countryside around Newbury.

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

Do you have a story to share?

Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.

If you have a story to share, we would love to hear from you.

Share your story
Share your story

We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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Published: 4 days ago

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