Tony Attwood, Patient

By: Beth Chesser

Posted on: 6 years ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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My name is Tony Attwood. I was diagnosed with Neuroendocrine cancer following abdominal surgery in January 2000.

In those days it was called carcinoid cancer. After being under the consultant surgeon he eventually transferred me to a consultant oncologist in whose care I was for a number of years before he too passed me on to an oncologist with a special interest in NET cancers and I have been under Dr. Alan Anthony ever since.

For most of my life I have had a needle phobia but attending a NET Cancer meeting at Pontefract Racecourse a number of years ago I was able to talk to other patients who were on Lanreotide injection decided to ask my consultant about it at my next appointment I started having these injections at St. James’ Hospital every 28 days. This is approximately 2 hours travel each way due to traffic so each visit took the best part of a day.

I was then offered the option of self administration or having my wife trained to inject me! I was not brave enough for self administration however my was prepared to be trained. A nurse made arrangements to visit us bringing with her training aids plus the pre-loaded syringe and under supervision I had my first injection administered by my wife. I have never looked back!!!

I live a normal life without having to look for the nearest toilets every time we go out and the hot flushes are almost non existent. This would never have happened had I not attended the meeting in Pontefract. I try to make Natter group meeting whenever possible and recommend that everyone should as not only do you receive helpful advice, learn about other treatments and development plus you make be able to help others.

Best wishes to all other patients and relatives.

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

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We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

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A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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