← Our News

Research & clinical trials, Campaigns & awareness, Events & webinars, Charity news & media, General

Volunteers needed for INCA “Patient Insights into Clinical Trials” videos

By Neuroendocrine Cancer UK

Posted 1 year ago

22/10/2025 12pm
As many of you know, we are part of INCA (the International Neuroendocrine Cancer Alliance). Our senior patient advocate, Kate Quirk, sits on the INCA Research Committee and one of their current projects is underway to produce a series of “Patient Insights into Clinical Trials” videos.
 
We’d like to recruit a UK patient to take part.
This is an international project for neuroendocrine cancer patients to speak generally about their experience taking part in clinical trials (within the past 3 years), they would discuss their communication with the team, and how they navigated the experience. And also what it meant to them to take part.
The information would be generic, not related to specific trials. Each video will last approximately 10 mins.
There will be 5 videos featuring patients from different geographical regions with a glossary included to explain exactly how clinical trials work for those who have never taken part.
If you are interested in being featured, and meet the criteria above please email [email protected] by 5th November 2025. Thank you.

Catch up on the latest news, stories and updates

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. ...