11th November 2026

Yesterday, 10th November, marked World Neuroendocrine Cancer Day, an important opportunity to raise awareness of neuroendocrine cancer and highlight the experiences and challenges faced by people living with the condition.

To mark the day, Neuroendocrine Cancer UK launched its new report, Seen Too Late, bringing together the experiences of people affected by neuroendocrine cancer to examine the ongoing challenges surrounding diagnosis.

The findings highlight a concerning lack of progress over the past six years. On average, people are still waiting almost five years from their first symptoms to receiving a diagnosis, with more than half initially being told they have another condition.

Behind these figures are real people who have spent years searching for answers, often feeling unheard, misunderstood or misdiagnosed.

The report highlights the urgent need for greater awareness and understanding of neuroendocrine cancer, better recognition of symptoms and improvements in diagnosis.

We would like to thank everyone who shared their experiences and contributed to the report. Their voices are helping to strengthen the call for change and ensure the challenges facing the neuroendocrine cancer community are heard.

Read the Seen Too Late report

The launch of Seen Too Late is an important step in highlighting the reality of delayed diagnosis and the need for action.

We encourage everyone to read and share the report with friends, family, colleagues and healthcare professionals to help raise awareness and support the campaign for earlier diagnosis.

READ THE SEEN TOO LATE REPORT 

World Neuroendocrine Cancer Day may have passed, but the need to raise awareness continues.

Together, we can help more people recognise the name, understand the symptoms and know that neuroendocrine cancer exists.

People are still waiting, on average, nearly five years for the right diagnosis. Let’s change that.