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To mark World Neuroendocrine Cancer Day on 10 November, Neuroendocrine Cancer UK launched a powerful new awareness film, The Invisible Conversation, alongside its new report, The Invisible Cancer.

 

Both highlight why neuroendocrine cancer remains so frequently missed, misunderstood and misdiagnosed, and why greater awareness is urgently needed.

 

The Invisible Conversation – a film that gets people talking

 

What happens when the voices of people living with an often-invisible cancer are heard in an unexpected place?

 

For its new awareness film, Neuroendocrine Cancer UK took an ordinary bench in Chesham town centre and gave unsuspecting members of the public an extraordinary surprise.

 

As people encountered the bench, they heard the voices of real people living with neuroendocrine cancer, seemingly coming from someone they couldn’t see.

 

The reactions are funny, moving and thought-provoking, but the message behind the film is a serious one.

 

Neuroendocrine cancer is a cancer that too few people have heard of. Its symptoms can be difficult to recognise, and many people living with the disease can appear perfectly well on the outside, despite the significant impact cancer has on their lives.

 

The film aims to start conversations, challenge perceptions and encourage more people to understand that neuroendocrine cancer exists.

 

Watch and share The Invisible Conversation:

 

The Invisible Cancer – a report highlighting the cost of delayed diagnosis

 

In February 2026 Neuroendocrine Cancer UK published The Invisible Cancer: Missed. Misdiagnosed. Misunderstood.

 

The report examines how delays, misdiagnosis and unequal treatment of neuroendocrine cancer in the UK are affecting patients, families and the NHS.

 

Its findings highlight the scale of the challenge:

 

 

• • It takes an average of 4.5 years from the first symptom to diagnosis.

 

• • Patients visit their GP an average of 11 times before receiving a diagnosis.

 

• • More than half of patients are diagnosed at an advanced stage (stages 3 or 4).

 

• • Around 6,000 people in England are diagnosed with neuroendocrine cancer each year – equivalent to one person every 90 minutes.

 

• • More than 36,000 people are living with neuroendocrine cancer in the UK at any one time.

 

 

The report also explores the impact of living with an invisible cancer, including the physical, emotional and financial challenges experienced by patients and their families.

 

It highlights the importance of recognising symptoms, improving awareness among healthcare professionals, reducing diagnostic delays and ensuring people have access to specialist care and appropriate treatments.

 

Featuring the experiences of people living with neuroendocrine cancer, the report gives a voice to those who have experienced the reality of being missed, misdiagnosed and misunderstood.

 

Read The Invisible Cancer report: Download the report (PDF)

 

Help us make neuroendocrine cancer harder to miss

 

The film and report are two important ways of shining a light on a cancer that remains largely invisible to the wider public.

 

One brings the experiences of people living with neuroendocrine cancer into everyday conversation. The other sets out the evidence and the urgent need for change.

 

Although World Neuroendocrine Cancer Day has passed, the message needs to continue reaching new audiences.

 

Please help us spread the word by watching and sharing the film, reading the report and talking to others about neuroendocrine cancer.

 

Together, we can improve understanding, challenge misconceptions and help ensure that fewer people have to wait years for answers.

 

Let’s make neuroendocrine cancer harder to miss.