Launching the Neuroendocrine Life Alliance

Apr 28, 2025

Neuroendocrine Cancer UK and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are proud to announce the launch of the Neuroendocrine Life Alliance.

This exciting new collaboration between Neuroendocrine Cancer UK and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) will aim to address:

  • The delays in time to diagnosis
  • The development and recognition of clear pathways to centres of expertise in the UK
  • Access to and licensing of new treatments and therapies
  • Access to research and clinical trials
  • Supporting patients with the psychological impact of lives, long or short, lives with our neuroendocrine diseases

 

OUR VISION, MISSION & AIMS:

VISION: Collaboration for a stronger UK voice for neuroendocrine communities

MISSION: To align on our strategic priorities to raise awareness, educate, support, and advocate for our neuroendocrine disease communities

AIMS:  

  1. Sharing knowledge and resources for the good of neuroendocrine communities
  2. Development of joint key strategic projects, including:
  • Education programmes
  • Support and wellbeing initiatives
  • Awareness-raising activities
  • Advocacy and policy work

 

Keep an eye on our Neuroendocrine Life Alliance webpage for future updates.