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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

May Highlights!

Thanks to you, this is what we have been able to achieve this month. - [video width="1080" height="1080"…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

OPEN Health Want to Hear from You – Research Study

OPEN Health are conducting interviews to understand the experiences of people living with neuroendocrine tumours of the gastrointestinal system and…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

New screening programme identifies clinical trial opportunities for neuroendocrine cancer patients 

- We are often told by our community that it is difficult to find information on clinical trials, and that the information around clinical trials can be…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

Rarecan Seeks Your Input on Genetic Analysis Services

  Rarecan, in collaboration with its partners, is exploring the potential for offering genetic analysis services to aid in cancer treatment decisions and…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

Pancreatic Enzyme Replacement Therapy (PERT) Update 

Pancreatic Enzyme Replacement Therapy (PERT) - product brands: Creon®, Nutrizym® and Pancrex®.    Many of you are aware that there has been some…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

Goblet Cell Adenocarcinoma of the Appendix (GCA) 

Some of you may have seen an article published in the Mail Online (19th March) about a young mum, diagnosed with Goblet Cell Adenocarcinoma of the…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

Primary Care Society for Gastroenterology Podcast Episode on Neuroendocrine Cancer 

As part of our ‘Spotlight on Neuroendocrine Cancer’ campaign, we aim to raise awareness of neuroendocrine cancer among healthcare professionals. We are…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

Neuroendocrine Cancer Surgical Specialty Lead (SSL) Appointed

- As part of our ‘Advancing Neuroendocrine Cancer Research’ campaign, we are delighted to announce the appointment of a neuroendocrine cancer Surgical…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot

NETTER-2 Study Results: Looking Beyond The headlines.

The latest breakthrough in neuroendocrine cancer treatment comes from the NETTER-2 trial, where Lutetium (177Lu) oxodotreotide, a radio-labeled…

Published: 3 years ago

By Leanne Talbot

Published: 3 years ago

By Leanne Talbot