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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Kate Quirk – INCA Research Committee

Kate Quirk, Neuroendocrine Cancer UK Patient Support Coordinator, has just been appointed to the INCA Research Committee, after contributing to the…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Neuroendocrine Cancers – A “NET” Update from Prof. Mark Strachan

Neuroendocrine Cancers – A “NET” Update from Prof. Mark Strachan Wednesday 12th April 2023  13:30pm – 15:30pm Liberton Kirk Centre, Kirkgate, Liberton,…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

High Grade Neuroendocrine Carcinoma Explained

Dr Nick Coupe, Medical Oncologist, Oxford University Hospital NHS Foundation Trust talks to Neuroendocrine Cancer UK about high grade neuroendocrine…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

INCA – New Factsheets

INCA (The International Neuroendocrine Cancer Alliance) has released six new factsheets including; genetic NET syndromes, Pheochromocytoma (pheo) and…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Makara Health names Neuroendocrine Cancer UK as one of their charities of the year

  Makara Health names Neuroendocrine Cancer UK as one of their charities of the year, and we are so thrilled and honoured. Thank you, Makara Health…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

Liver transplantation and Neuroendocrine Tumours: advancing care

Liver transplantation for cancer is evolving, offering new opportunities for selected patients diagnosed with Neuroendocrine Cancer and other malignancies…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Rare Minds Matter: Mental Health Survey 2023

Mental health support must be an integral part of rare disease care. Today, Rare Disease Day 2023, Rareminds have launched their Rare Minds Matter…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Are Neuroendocrine Cancers Rare?

Today is Rare Disease Day. Assumed rare, Neuroendocrine Cancer is now England's 10th most prevalent Cancer, with a continually rising incidence – that has…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

One Cancer Voice – Petition to the Prime Minister

One Cancer Voice - Petition to the Prime Minister to demand the UK Government keeps its commitment to transform cancer care and services. In a speech at…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK