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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Dr Garan Jones – Research Grant Winner

Winner of Neuroendocrine Cancer UK's £30,000 grant for research Dr Garan Jones, the University of Exeter - "Our research project is titled “Determining…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Olutaton®

Neuroendocrine Cancer UK has been made aware that there is an imminent issue regarding the availability of Olatuton® (Octreotide long-acting) somatostatin…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Why do we have a Moth on our logo?

In medicine, the term “zebra” is used in reference to a rare disease or condition. “If you hear hooves, you assume horse.” The rare disease community…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

When Nikie met Sally…

I first met Sally in 2015, not long after I started with NCUK - little did I realise, at the time, what an incredible force of nature this softly spoken…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Welcome our new Trustee, retired GP David

We are delighted to announce the appointment of our new Trustee, David David is a semi-retired GP and received a diagnosis of Neuroendocrine Cancer in…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

Kicking Cancer’s Butt – With Indomitable Spirit Award

Congratulations to one of our 'Natter' patient support group members, Leanne Armstrong, as she has just been presented with the Taekwondo 'Indomitable…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Ann Edgar Charitable Trust Integration

Neuroendocrine Cancer UK (NCUK) are delighted to be able to announce that the Ann Edgar Charitable Trust (TAECT) will integrate with our charity from…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

ENETS-INCA NET Cancer Day 2022 Educational Webinar Recording Available

On November 10th, 2022, INCA partnered with ENETS in holding the annual educational event: ENETS-INCA NET Cancer Day 2022 Educational Webinar. The NET…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Radionuclides for Health UK

We advocate for the establishment of a stable UK supply of radionuclides for health and medical use. Our main focus is on the use of radionuclides in…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK