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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Neuroendocrine Cancer UK celebrates the 20th Anniversary of its foundation!

On Saturday 11th June, Neuroendocrine Cancer UK celebrates the 20th Anniversary of its foundation!   In 2002 the “Living with Carcinoid” Support Group was…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

Cancer: The ‘griping’ feeling patients often endure for ‘several years’ before diagnosis

Many of you may have seen the article in the Express published online on Saturday 28th May: Cancer: The ‘griping’ feeling patients often endure for…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Neuroendocrine Cancer UK June Newsletter

Click here to read our latest newsletter.  Subscribe to receive Neuroendocrine Cancer news, updates and details of education events.

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

New ENETs Guidance paper for Carcinoid Syndrome & Carcinoid Heart Disease

New ENETs Guidance paper for Carcinoid Syndrome & Carcinoid Heart Disease: Recommendations and Future Research Aims Carcinoid syndrome (CS) is the most…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Lamb Jam Charity Music Festival! 

Lamb Jam Music Festival - 25th June 2022 - Forage Farm Shop and Kitchen, Penllyn Estate Farm Llwynhelig, Cowbridge Forage Farm Shop and Kitchen present…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

NEW PODCAST!! Mental Health Awareness Week

In light of the recent Mental Health Awareness Week, we have recorded a special episode with Kym Winters, founder and Director of Rare Minds about some of…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

Barefoot astronauts stun Snowdon walkers by stripping naked at summit for NCUK!

The pair endured agonies climbing the mountain to raise money on behalf of a friend who has inoperable cancer. Truly incredible!! And definitely a first…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Update on Lutathera® announcement by Novartis

Some of you may have seen the announcement, by Novartis, that there is a temporary, voluntary suspension of radioligand therapy production: May 5th 2022 —…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Carcinoid Heart Disease : The Heart of The Matter

Carcinoid Heart Disease (CHD or Hedinger syndrome), is a rare condition that affects about one in five (20%) patients who have a Neuroendocrine Cancer AND…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot
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