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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Diet & Nutrition and Neuroendocrine Cancer

Did you know that we have a whole section dedicated to Diet & Nutrition and Neuroendocrine Cancer on our website?   View here ➡️…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer T-shirts

Have you seen our Neuroendocrine Cancer UK branded t-shirts?   These comfortable cotton t-shirt features the Neuroendocrine Cancer UK branding and also…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer Support

Whether you are newly diagnosed, caring for someone, or living with Neuroendocrine Cancer - there is support available to you.   Please visit our website:…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer Treatments

There are a number of treatments available for Neuroendocrine Cancer – but your treatment should be based on your Neuroendocrine Cancer, your general…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

£1591.24 raised through Facebook & Instagram donors

Thank you to everyone who set up Facebook fundraisers, and to all who made donations through Facebook and Instagram. You raised £1591.24 throughout…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer UK partners with the RCGP

Following an incredibly positive partnership meeting with the Royal College of General Practitioners (RCGP), Neuroendocrine Cancer UK is delighted to…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer Support Groups

Our Neuroendocrine Cancer ‘Natter’ Support Groups are local community based or regional online meetings that offer an opportunity to meet others in your…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Difficult Pain and NET Tumours

During August, we're posting videos from our Patient Education Event for those who missed them first time & for…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

New Rare Diseases Action Plan for Scotland

Genetic Alliance UK are delighted to be supporting the Scottish Government in their work to implement the UK Rare Diseases Framework by developing a new…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot
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