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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Just Diagnosed, we’re here for you

We cannot tell you that we know how you feel right now or how you may feel as time goes by…   The main thing to try and remember at this stage is that you…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Prof Valle – Treatments across the Neuroendocrine Cancer spectrum

Throughout August, we're posting the videos from our 2020 Patient Education Event, for anyone who missed them…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer, End of Life Care

Neuroendocrine Cancer 🕊️End of life care   End of life care is sometimes called advance care planning, and involves thinking and talking about your wishes…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues

A British Journal of Nursing study by Catherine Bouvier, Tara Whyand and Philippa Davies surveyed patients worldwide about the side effects of somatostatin analogues, and found many were reported far more often than clinical trials had suggested.

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues

A publication on the prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues written by Catherine…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

£2448.94 raised through Facebook & Instagram donors

Thank you to everyone who set up Facebook fundraisers, and to all who made donations through Facebook and Instagram.   You raised £2448.94 throughout July…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer Patient Information Factsheets

Did you know that we have produced factsheets for specific Primary Neuroendocrine Cancer sites? These factsheets share comprehensive information and are…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Faces of NCUK, Kevin’s Story

Name: Kevin Age: 53 Neuroendocrine Cancer Site: Small Intestine / Liver Kevin’s Story: I was diagnosed in early 2021 with primary NET in my small…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot
Fundraising Ideas

NCUK 2021 Skydiving Challenge – raising money for Neuroendocrine Cancer research

✈️🪂 Leaping out of an aircraft and plunging down to earth at speeds of over 120 mph is a breathtaking, heart-pounding kick of a lifetime. If you want…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot
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