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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

When is a rash not a rash?

Name: Sophie Age: 52 Neuroendocrine Cancer Site: Glucagonoma - pancreas (primary), paraaortic retroperitoneal lymph nodes (secondary). Sophie's Story:…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Do You C Us?

Neuroendocrine Cancer UK are Delighted to be here at the 'Do you C Us' Parliamentary event driven by Cancer 52, and chaired by Paul Bristow MP.   Raising…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Neuroendocrine Cancer Diagnosis

In 2020 we asked for members of our community to share their experiences of care to date. The purpose of this survey was to consolidate and add to…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Stomach NENs

Stomach NENs are rare and account for less than 2% of all stomach cancers. Of those that occur, there are 3 key types – potentially 4*:   1️⃣ Type 1: The…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

WECAN Patients in Publications Course

About the WECAN Patients in Publications Course Patient advocates need to publish their own research and survey data, and are invited to be co-authors or…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

PRRT – A carer’s journey

EXPERIENCES OF PRRT We were very grateful to be given the opportunity of fighting Ian’s Neuroendocrine Cancer liver mets through PRRT.  Ian had been…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Lung NENs

This week is Breathe Easy Week, which aims at raising awareness of lung conditions.   Have you heard of Lung NENs?   FIND OUT MORE ➡️…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

Run for Neuroendocrine Cancer UK

The ASICS London 10K will take place on Sunday 25 July 2021 and we would love for you to run the race and fly the flag for Neuroendocrine Cancer UK.  …

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot

World Wellbeing Week – Be physically active

World Wellbeing Week - Be physically active 💪 Being active is not only great for your physical health and fitness. Evidence also shows it can also improve…

Published: 5 years ago

By Leanne Talbot

Published: 5 years ago

By Leanne Talbot
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