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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Improving Care – Perspectives and Recommendations from the Rare Disease Community

 'Learning from the Pandemic to Improve Care for Vulnerable Communities: The Perspectives and Recommendations from the Rare Disease Community'.   This…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Questions for my Neuroendocrine Cancer appointment

There are a few things you can prepare in advance that will help you to get the most out of time with your doctor or health professional at your hospital;…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Research – 100,000 (100K) Genomes Project

 We were delighted to award the 2020 NCUK grant to Dr Marc Ooft, Consultant Histopathologist, Kings College Hospital. We would also like to thank Mr P…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Support Neuroendocrine Cancer UK by becoming a Corporate Parter

 Do you own your own business? Or do you work for a company that could support NCUK by becoming a Corporate Partner?   There are many ways that your…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Research – New drug for the treatment of pancreatic neuroendocrine tumours (PNETs)

 Kate Lines - NCUK research grant awardee In 2018, Kate was awarded the NCUK research grant. The aim of the project was to develop a new drug for the…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

NHS Rolls Out Capsule Cameras to Test for Cancer

NHS Rolls Out Capsule Cameras, to more people, in a trial to test for cancer - Miniature cameras which patients can swallow to get checked for cancer, of…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Coping with Sc-Anxiety by Kate Quirk – Voices of NCUK

 Coping with Sc-Anxiety by Kate Quirk - Voices of NCUK   One way or another, a cancer diagnosis is life changing.   And when you are living with cancer,…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

EVENT – NCRI-ICRP: Addressing disparities in international cancer research

22nd March 14:00 (GMT) | 15:00 (CET) | 09:00 (EST) - NCRI-ICRP: Addressing disparities in international cancer research Event …

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Christodoulos Pipinikas – NCUK research grant awardee 2016

Using an integrated approach combining data generated through the use of different, advanced molecular tools, we have previously demonstrated that…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot
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