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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

NET GeCIP Review Meeting

NCUK's CEO, Catherine Bouvier was delighted to be invited to be part of the NET GeCIP review meeting today and gained valuable insights into where we are…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

UK Charities Call For Emergency Government Funding

In February, 2021, more than 600 charities in the UK, including NCUK, signed an open letter to the UK Prime Minister Boris Johnson urging the government…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

NCUK Supports Ovarian Cancer Awareness Month

Neuroendocrine Cancer of the Ovary affects approximately 30 women a year in the UK. 🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀️🙍‍♀…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Bone Metastases

Bone Metastases in Neuroendocrine Neoplasms: From Pathogenesis to Clinical Management Thanks to the improvement of therapeutic options, which results in…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Biopsychosocial Welfare

 We are delighted to see the biopsychosocial welfare of those living with Neuroendocrine Cancer represented in the abstracts and posters at this year's…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Annual ENETs Conference 2021

What a fantastic first day at the Annual ENETs Conference. Conference summaries will be made available on our website in the coming weeks. We'll let you…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Cancer Research UK Clinical Trial

CRUK is looking to recruit 5-8 people affected by rare cancers to take part in 2-3 focus groups, to inform the design of a clinical trial. The focus group…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Use MY Data Webinar 

🗓 - 3rd March ⏰ - 10:00 - 11:30   The idea of patients being able to see, interact and even make corrections to their own health records has been talked…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Newly released RARE 2030 Recommendations

Click here to view - Newly released RARE 2030 Recommendations These recommendations are intended for shaping a new policy framework for rare diseases over…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot
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