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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

“NETs – Why this master of disguise needs careful handling” 

A fantastic INCA inspired article in Cancer World. Sophie Fessl hears from patients and experts about why specialist NET services are so important. Great…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

SCAN 2019

This autumn the International Neuroendocrine Cancer Alliance (INCA) invites NET patients and healthcare professionals to scan the access challenges to…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NET Patient Foundation holds Patient Education Event in London

It was great to see so many of you attending the Patient Education Event held Tuesday 3rd September in London. This event focused on Neuroendocrine Cancer…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Marbellys Bayne’s Neuroendocrine Cancer Story

I was diagnosed with Stage IV Neuroendocrine Cancer in October 2015.  The primary tumour was in my small intestine with metastasis to liver and lymph…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Oxford NET Natter’s Tripedathon

Join the NET Natter Oxford Team on 15 September 2019 for Oxford NET Natter’s Tripedathon, in aid of the NET Patient Foundation. 'Our aim is to complete a…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Natasha’s Neuroendocrine Cancer Story

I was diagnosed in 2014 with a primary pancreatic NET that had spread to my liver. Following this diagnosis I had Whipples procedure and liver resection…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

What molecular alterations causes NETs to develop and grow?

This really important piece of work looks at the the landscape of molecular alterations in pancreatic NETs and NETs of the small intestine. We know that…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NPF & UKINETs Research Grant 2019

We are pleased to announce the 2019 round of the UKINETS and NET Patient Foundation research grant in support of NET research. This is open to basic…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Aretha Franklin’s Detroit-based doctor talks about Pancreatic Neuroendocrine Tumours

The oncologist who treated Aretha Franklin's pancreatic neuroendocrine tumours spoke to the Detroit Free Press after the star's death a year ago about the…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot
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