Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals

By Leanne Talbot

Posted 7 years ago

06/11/2019 11am

Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.

[npfButton size=“small” text=”Click here to read more” href=”https://www.neuroendocrinecancer.org.uk/wp-content/uploads/Leyden_et_al-2019-International_Journal_of_Cancer.pdf ” background-colour=”#37b8c0″ text-colour=”#ffffff”] 

Catch up on the latest news, stories and updates

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. ...