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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

NPF April 2019 Roundup

Each month we provide a roundup of announcements, news and updates. [npfButton size=“small” text="Click here to read our April roundup"…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

The Index of Cancer Preparedness (ICP)

The Index of Cancer Preparedness (ICP) looks at a wider range of elements that are relevant to cancer control. It presents data on 45 indicators relevant…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Women’s and Men’s Health – Live Facebook Q&A

Women are more likely to be diagnosed with depression than men, but men have a higher suicide rate. In 2017, 5,821 suicides were recorded in Great…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Important CREON® Update

Mylan, the marketing authorisation holder for Creon, has decided to discontinue the manufacture and distribution of Creon 40K from June 2019. It’s…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NETest

Trying to find optimal investigations to get the most relevant information about what is happening to your tumour(s) is really important, so that the…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Rare Barometer Voices Survey

New Rare Barometer Voices survey on availability and experiences of rare disease treatments is now live and available in 23 languages! We need your help…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Gut Surgery – How Diet can Help V2

(Previously titled Neuroendocrine Tumours - Diet & surgery to the Digestive System). This guide has been developed to ensure NET patients have access to…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NPF March 2019 Roundup

Each month we provide a roundup of announcements, news and updates. [npfButton size=“small” text="Click here to read our March roundup"…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation attends Hackney GP Seminar on Rare and Uncommon Cancers

In October, Hackney Council unanimously passed a motion on rare and uncommon cancer. On the 28th March, City and Hackney Clinical Commissioning Group and…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot
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