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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Winter Vaccinations & Staying Well This Season

Winter Vaccinations & Staying Well This Season As the colder months roll in, many of our community are doing what they can to keep well through winter –…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Catherine Bouvier Ellis steps down after 19 years leading Neuroendocrine Cancer UK

Neuroendocrine Cancer UK today announces that Catherine Bouvier Ellis, its Co-Founder and Chief Executive Officer, will be stepping down from her role on…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Hero Awards 2025 – Now Live!

Neuroendocrine Cancer UK Hero Awards 2025 - Launch today!

Published: 1 year ago

By Beth Chesser

Published: 1 year ago

By Beth Chesser

‘SCAN’ Survey 2025 – One voice matters, thousands create change. Help improve care for NET patients! 

Neuroendocrine Cancer UK is pleased to announce the launch of the International Neuroendocrine Cancer Alliance (INCA) 'Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients' (SCAN) 2025.

Published: 1 year ago

By Beth Chesser

Published: 1 year ago

By Beth Chesser

INCA Advocacy with Catherine Bouvier

Cathy facilitated a discussion with members of the INCA community from Australia, Africa,  USA, India, UK & Norway to share insights and experiences, but…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer

  We are delighted to announce the launch of a James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer, jointly led by…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Upcoming Nurse Webinar – 17th September 8am

Calling All Nurses: Join the Will Norman Nurse Webinar on Neuroendocrine Cancer Join us on 17th September at 8am GMT for a free, online educational webinar focused on Neuroendocrine Cancer, brought to you in collaboration with NeuroEndocrine Cancer Australia, Neuroendocrine Cancer UK, and NeuroEndocrine Cancer New Zealand. This 2-hour session includes expert-led presentations and a live Q&A roundtable. Open to nurses only. Register now to secure your place!

Published: 1 year ago

By Beth Chesser

Published: 1 year ago

By Beth Chesser

Neuroendocrine Cancer UK Working with National Disease Registration Service – Get Data Out 

Get Data Out  We are delighted to announce that we are working, alongside neuroendocrine cancer expert clinicians, with the National Disease Registration…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Mounjaro® (Tirzepatide) & Neuroendocrine Cancers

We have had a number of enquiries about the use of Mounjaro® (Tirzepatide) and similar medications (e.g. Wegovy®, etc) in individuals with neuroendocrine…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK
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