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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

NET Patient Foundation attends ONO Pharmacetuicals NET Workshop

NET Patient Foundation, alongside other members of the NET community were bought together for a one day workshop to share our experiences of the disease…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NPF and UKINETs Award £25,000 Grant to a Member of TRACERx Team

NET Patient Foundation and UKINETs awarded two £25,000 grants in 2018. One of the winners is a members of the TRACERx team. This project gained our…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NPF Awards £25,000 Grant for Research in Molecular Genetics in PNETs

NET Patient Foundation and UKINETs awarded two £25,000 grants in 2018. One of our worthy winners is Kate Lines, a PostDoctoral Researcher, who works at…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

The best decisions come from the best run MDTs

"Having just retired from active clinical practice as a breast surgeon, I can look back at how decision making has evolved over the course of my career,…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

From Patent to Patient

Analysing access to innovative cancer drugs.  The Institute of Cancer Research (ICR) have produced a report which asks how we can best harness advances in…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Lets Talk About Liver NETs Live Facebook Q&A

January is Love Your Liver Month. The liver is the largest solid organ in the body, weighing some 1.8 kg in men and 1.3 kg in women. It holds…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

**FULLY BOOKED**Patient Education Event – Manchester – Free to Attend

** THIS EVENT IS NOW FULLY BOOKED - PLEASE SIGN UP TO OUR NEWSLETTER FOR FUTURE EVENTS** NET PATIENT FOUNDATION’S PATIENT EDUCATION EVENT FOR ANYONE…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NHS Long Term Plan

Today the NHS published the NHS Long Term Plan, setting out how they will make the NHS fit for the future. It details the improvements they want to make…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

How Does Prognosis of NETs Differ Based on Site of Origin?

An analysis of more than 70,000 patients revealed significant differences with regard to survival between different sites of origin for neuroendocrine…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot
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