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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

A look back at 2018 and what 2019 has in store for NPF…

2019 has arrived and we have been taking a look back at some of our key activities from the past 12 months. At the NPF we ensure that all of our work is…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Frequently Asked Questions

Click here to check out our new FAQs page. 

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation attends the UKINETs Annual Conference 2018

On Monday 10th December NPF's CEO, Catherine, and NPF Nurses, Nikie and Lindsey, attended the UKINETs 16th Annual Conference. The day was focussed on…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NPF holds NETs Training Session for GPs

One of NPF’s main aims is to increase national awareness of Neuroendocrine Cancer and influence improvements in outcomes. On Wednesday 5th December we…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

National Cancer Research Institute (NCRI) launches the UK Top 10 Living With and Beyond Cancer Research Priorities

The National Cancer Research Institute (NCRI) has recently released the UK Top 10 living with and beyond cancer research priorities. NCRI partnered with…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Lets Talk About Lung NETs Live Facebook Q&A

November is Lung Cancer Awareness Month.  Lung cancer is globally the biggest cause of cancer related death, resulting in almost 1.6million deaths per…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Cancer Registration

When a person is diagnosed with cancer in England, information about them is automatically included in the National Cancer Registry.   It is data from…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Are you interested in acting? – Raising funds for NPF

Here is an amazing prize for anyone interested in film acting…an opportunity not to be missed!  A very unique Christmas present for someone special. The…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Cancer Day UK 2018

NET Cancer Day is an annual event held on the 10th of November, created to increase awareness of Neuroendocrine Cancers and to provide a voice to the NET…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot