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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Medical Innovation and the Battle Against Cancer

NET Patient Foundation attended the 13th Annual Lecture organised by the Medicines and Healthcare products Regulatory Agency.   This was an inspiring and…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Rare cancers: the landscape is changing

"Fourteen years ago, when I was first thrust as a new patient advocate into the world of rare cancers – following my son’s diagnosis of a brain tumor – I…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Cancer 52: Getting a better deal for people with rare and less common cancers: the next ten years.

Cancer 52 recently published their new briefing document 'Getting a better deal for people with rare and less common cancers: the next ten years'.  During…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Charity Race Night for NET Patient Foundation.

On the 13th September,  Swindon Link and Positive Media Group held a charity race night fundraiser for NET Patient Foundation. "We chose to support NET…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Isle of Wight Walk for NETs

On the 29th September, Madeline and Anouska walked 40km across the Isle of Wight to raise funds for NET Patient Foundation.  "My big sister and best…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Family fun days raises thousands for NET Patient Foundation

On the 6th August Marc Gillan held a family fun day at The Four Eagles Pub to help raise awareness of Neuroendocrine Cancer. Marc has held a number of…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

In Memory of Katharina Mellar

It is with a heavy heart that we have to announce that Katharina Mellar, the long-standing and tireless chairwoman of the Netzwerk NeT, passed away on the…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Mike’s Neuroendocrine Cancer Story

I still feel hesitant in drawing attention to myself and the fact that I have NET cancer. However awareness is the key because if you don’t know about NET…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Gareth takes part in Great North Run for NET Patient Foundation

A huge thank you to Gareth James for taking part in the Great North Run for NET Patient Foundation in support of his sister and the Neuroendocrine Cancer…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot
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