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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

URGENT UPDATE 9TH JULY – Rare Cancers Bill

Update 11th July 2025 Delighted to see Dr Scott Arthur's Rare Cancers Bill pass through third reading in the House of Commons on Friday. This Bill is a…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

URGENT ACTION NEEDED – CHANGES TO PIP PROPOSED

URGENT ACTION NEEDED  The impact of cancer is far more than medical. With it, comes a hidden and often devastating financial burden that many do not see…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

PERT Shortages Survey

We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and…

Published: 1 year ago

By Neuroendocrine Cancer UK

Published: 1 year ago

By Neuroendocrine Cancer UK

Breakthrough Research Paves Way for Personalised Treatment in Lung Neuroendocrine Cancer

Discover how breakthrough lung research from Dr Jules Derks and Maastricht University is advancing personalised treatment for Lung Neuroendocrine Tumours (Lung NETs), offering new hope through a simple tool that could transform targeted therapies.

Published: 1 year ago

By Beth Chesser

Published: 1 year ago

By Beth Chesser

Neuroendocrine Cancer in the Daily Express – ‘I had no idea I was dying – and then I found out on the NHS app’

Feature photo credit: Melanie Lucas | Trigger Warning – Some readers may find the following…

Published: 1 year ago

By Beth Chesser

Published: 1 year ago

By Beth Chesser

Neuroendocrine Cancer – The Expert Patient: Podcast on neuroendocrine cancer to raise awareness among GPs

As part of our ‘spotlight on neuroendocrine cancer’ campaign which aims to raise awareness of neuroendocrine cancer among healthcare professionals, we…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Launching the Neuroendocrine Life Alliance

Neuroendocrine Cancer UK and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are proud to announce the launch of the Neuroendocrine…

Published: 2 years ago

By Beth Chesser

Published: 2 years ago

By Beth Chesser

The First-Ever World Hormone Day – Today, 24th April 2025

24 April 2025 – The first World Hormone Day takes place today to raise awareness of the vital role of hormones…

Published: 2 years ago

By Beth Chesser

Published: 2 years ago

By Beth Chesser

Advocacy & Policy Updates

Advocacy & Policy Neuroendocrine Cancer UK was founded with the vision of providing support, raising awareness, and driving research for those affected by…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK
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