Tom was 27 when a pancreatic NET changed everything. For seven months he had been told his pain was health anxiety and too many fizzy drinks. ...
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Everyone’s experience of neuroendocrine cancer is different. Here, families, friends and carers share their personal stories, offering insights into the challenges, emotions and everyday realities of supporting someone with neuroendocrine cancer.
Tom was 27 when a pancreatic NET changed everything. For seven months he had been told his pain was health anxiety and too many fizzy drinks. ...
Written by her daughter Rhiannon and her dad, Olwen's story begins with a scan in May 2019 to investigate internal bleeding. She was diagnosed in August ...
In July 2019 Stephanie's husband David was diagnosed with neuroendocrine cancer at 26. She writes about the consultant who asked 'Why are you crying, he isn't ...
Slowing down has helped me accept life’s changes, find peace within uncertainty, and come to terms with the person I am now. ...
Dave shares his powerful 20-year journey as a caregiver to his wife Deb, living with stage 4 neuroendocrine cancer. From misdiagnosis to expert care at The ...
I’m Polly, 68 years old. In a former life I was a Business Analyst and IT Project Manager. Taking early retirement in my late 50s, it ...
- Many of you will know or will have read my previous blogs about my husband Ian’s story and how living with neuroendocrine cancer and Carcinoid ...
In memory of Andrew, written by his wife, Faye. - - I had known Andrew throughout my teenage years, he was very popular, especially with the ...
I first met Barrie, not long after I joined Neuroendocrine Cancer UK, about 7 years ago, at a Natter group: one he co-founded and facilitated in ...
I was a partner when Neuroendocrine Cancer came into our lives. We had been together for 26 years, had talked about getting married, but just hadn’t ...
She has never liked rollercoasters — even pushing her children on the park roundabout was too much. Then she found herself on one for nine years, ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.