Supporting the

Neuroendocrine Cancer Community

Neuroendocrine Cancer Diagnosis

Jun 29, 2021

In 2020 we asked for members of our community to share their experiences of care to date. The purpose of this survey was to consolidate and add to previous national and global Neuroendocrine Cancer (NC)* patient experience surveys and reports, to gain further insights into the patient pathway for those diagnosed with Neuroendocrine Cancer.
From initial symptom, through seeking advice to diagnostics and treatments – does current experience of Neuroendocrine Cancer care confirm the influential factors identified in previous cancer care reports? We received 880 responses.
One question asked respondents what the motivators for seeking health advice were. Here are some of the responses that we received:
💬 My wife noticed that the coughing was more frequent and persistent.
💬 I just persisted. Pain was in the same place all the time.
💬 I did not seek further medical advice until my symptoms became much worse.
💬 It was only unexplained weight loss that got me to thinking that this was more than IBS.
💬 I had a gut feeling that something more was going on.
You can read the full Barriers to Diagnosis report here ➡️
Find out more about our Bridging the Gap campaign here ➡️