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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

PERT Update April 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Neuroendocrine Cancer in the Daily Express News – The importance of access to mental health support for cancer patients

Feature photo credit: Neil Dickson | Trigger Warning - Some readers may find the following account upsetting.     We are delighted to support the Daily…

Published: 2 years ago

By Beth Chesser

Published: 2 years ago

By Beth Chesser

Selective internal radiation therapy (SIRT) Update

Following on from our earlier News Item - and given the degree of interest this topic has generated on our social media platforms and Facebook Forums; we…

Published: 2 years ago

By Beth Chesser

Published: 2 years ago

By Beth Chesser

Mental Health and Neuroendocrine Cancer in the News – Daily Express

We are delighted to support the Daily Express Cancer Care campaign ensuring that all cancer patients get access to mental health support both during and…

Published: 2 years ago

By Beth Chesser

Published: 2 years ago

By Beth Chesser

SIRT News

Preliminary Policy Proposal (PPP) takes next step towards improving access to SIRT The SIRT Preliminary Policy Proposal (PPP) takes an important next step…

Published: 2 years ago

By Beth Chesser

Published: 2 years ago

By Beth Chesser

Hospital Outreach

Can you help us with reaching out to hospitals?  With your help we will be able to highlight the full range of support and services we offer to the…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Rethinking the “Rare”: new paper calls for greater awareness among healthcare professionals

Neuroendocrine Cancer UK are delighted that our article. ‘Are NENs no longer a rare cancer?’ has been published in the March edition of…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

ENETS attendance and Helpline hours

Helpline closure: Wednesday 5th March 1-4pm and Thursday 6th March 10am – 4pm As some of our team will be attending the European Neuroendocrine Cancer…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK

Private Members Bill on Rare Cancer – please write to your MP

Dr Scott Arthur MP (Lab, Edinburgh SW) has introduced a Private Members Bill on Rare Cancers that sets out to raise awareness and tackle some of the…

Published: 2 years ago

By Neuroendocrine Cancer UK

Published: 2 years ago

By Neuroendocrine Cancer UK
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