We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and cystic fibrosis.
As charities, we are committed to monitoring the situation and sustaining pressure for this problem to be addressed.
We’ve launched a second survey to gather updated insights and better understand the situation from those directly impacted.
If you or someone you care for has been affected by PERT shortages, please take our short, joint charities, survey to share your experience: https://r1.dotdigital-pages.com/p/6RH5-NKZ/tell-us-how-pert-shortages-are-impacting-you
You can also contact our Helpline for information and support if you have problems getting PERT. We cannot provide PERT but can help with information on access and managing symptoms related to pancreatic enzyme insufficiency.
#EndPERTShortages