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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Incidence and survival of neuroendocrine neoplasia in England 1995–2018

NEW : Neuroendocrine Cancers - why data matters  Incidence and Prevalence of Neuroendocrine Cancers in England 1995-2018. This comprehensive whole…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

10th Annual INCA (International Neuroendocrine Cancer Alliance) Global Patient Advocate Summit

The NET patient community has finally met in-person after 3 years at the 10th Annual INCA (International #Neuroendocrine Cancer Alliance) Global Patient…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Read our August Newsletter!

Hello and welcome to our Monthly Newsletter!  Thank you for joining us! We have lots of exciting things coming up over the next few months, so please keep…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

Ensure cancer patients are able to access affordable travel insurance

PLANETS Cancer Charity started this petition to Financial Conduct Authority Cancer patients are currently being denied valuable respite as they are unable…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

Follow on Care and Self Management Survey – Have your Say!

THIS SURVEY SHOULD TAKE APPROXIMATELY 8-10 MINUTES TO COMPLETE NCUK is a patient organisation and advocacy group bringing the views and experience of…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

Nigel’s 100km London to Brighton Bike ride!

After a pasta – packed supper on Friday we tried on our new orange high vis cycling jerseys which Olivia had bought as a team strip and equally bright…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

Neuroendocrine Cancer: Vitamins and Minerals – is supplementation necessary?

  The presence and/or treatment of Neuroendocrine Cancer can disrupt normal digestive function - this can impact on our ability to absorb nutrients,…

Published: 4 years ago

By Leanne Talbot

Published: 4 years ago

By Leanne Talbot

NHS Health and exercise commonwealth campaign

The Commonwealth Games 2022 has proven to be one of the most successful ever held, with more than 5,000 athletes from 72 nations competing in 19 different…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK

NHS-Galleri Trial

In July NHS chief executive Amanda Pritchard announced the latest milestone in NHS cancer innovation with an update on the NHS-Galleri trial (the blood…

Published: 4 years ago

By Neuroendocrine Cancer UK

Published: 4 years ago

By Neuroendocrine Cancer UK
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