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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

NET Masterclass 2026: 2 day medical education event

NET Masterclass 2026 is a free, two-day medical education event taking place on 18–19 June 2026 in London. It is organized by University College London…

Published: 8 months ago

By Beth Chesser

Published: 8 months ago

By Beth Chesser

Have a pancreatic neuroendocrine tumour diagnosis? Help Shape a New Quality of Life Questionnaire

Researchers are developing a new questionnaire designed specifically for people living with pancreatic neuroendocrine tumours (PanNET). The aim is to…

Published: 8 months ago

By Beth Chesser

Published: 8 months ago

By Beth Chesser

A monthly donation helps us to help others 

One of the most effective ways to support our work is through a monthly donation. Regular giving allows us to plan ahead, expand our services, and provide…

Published: 9 months ago

By Neuroendocrine Cancer UK

Published: 9 months ago

By Neuroendocrine Cancer UK

The Invisible Cancer – In the Press

Following the launch of our Invisible Cancer report on World Cancer Day, neuroendocrine cancer has received widespread national and regional media…

Published: 9 months ago

By Leanne Talbot

Published: 9 months ago

By Leanne Talbot

Your Voice Matters: Help Shape the Future of Genomics

NHS East Genomics invites patients and the public to be part of the future of genomics in our region. Discover the different ways you can get involved and…

Published: 9 months ago

By Beth Chesser

Published: 9 months ago

By Beth Chesser

New report launched on World Cancer Day highlights the hidden impact of neuroendocrine cancer

On World Cancer Day 2026, we are proud to launch our new report, The invisible cancer: How delays, misdiagnosis and unequal treatment of neuroendocrine…

Published: 9 months ago

By Neuroendocrine Cancer UK

Published: 9 months ago

By Neuroendocrine Cancer UK

Manchester Broncho-Pulmonary Neuroendocrine Cancer Education Event 

This week, healthcare professionals from across the UK came together in Manchester for a dedicated, multidisciplinary education event focused on improving…

Published: 10 months ago

By Neuroendocrine Cancer UK

Published: 10 months ago

By Neuroendocrine Cancer UK

Less Survivable Cancers Awareness Week 

The Less Survivable Cancers Awareness Week observed annually in January, highlights the persistent and high priority need for better early diagnosis,…

Published: 10 months ago

By Neuroendocrine Cancer UK

Published: 10 months ago

By Neuroendocrine Cancer UK

Clinical Trial Opportunity for People with Insulinomas

Clinical Trial Opportunity for People with Insulinomas Rezolute is a company working on new treatments for rare diseases. They are running a phase 3…

Published: 10 months ago

By Neuroendocrine Cancer UK

Published: 10 months ago

By Neuroendocrine Cancer UK
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