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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

NHSE Specialised Commissioning Patient and Public Voice (PPV) Partner Roles

NHS England is recruiting for the following PPV partner roles:    NHS England » Specialised commissioning patient and public voice (PPV) partner roles   …

Published: 11 months ago

By Neuroendocrine Cancer UK

Published: 11 months ago

By Neuroendocrine Cancer UK

Looking Back on 2025: A Year of Progress and Hope

https://youtu.be/6fCWMsNMZxs   As 2025 draws to a close, it feels the right moment to reflect on an extraordinary year for Neuroendocrine Cancer UK - a…

Published: 11 months ago

By Lisa Walker

Published: 11 months ago

By Lisa Walker

The James Lind Alliance Neuroendocrine Cancer Priority Partnership Steering Group

Hi – my name is Elaine and I’m a member of the Manchester Patient Support Group. I was diagnosed with an insulinoma almost 14 years ago and am under the…

Published: 11 months ago

By Neuroendocrine Cancer UK

Published: 11 months ago

By Neuroendocrine Cancer UK

Patient and NCUK Craig at UKINETs

On Monday 1st December I was invited to UKINETS 2025 as one of their guest speakers. This year they wanted to hear from a patient. The subject was…

Published: 11 months ago

By Neuroendocrine Cancer UK

Published: 11 months ago

By Neuroendocrine Cancer UK

Bronchopulmonary Carcinoids (BPCs) Unveiled – In-Person Event – 12th January 2026

Save the Date: Monday, January 12, 2026 — Bridging the Gaps in Care and Shaping the Future is a high-quality, in-person national educational event taking place from 8:30 AM to 4:30 PM at the Holiday Inn Manchester – City Centre. Aimed at all clinicians involved in the care of patients with BPCs, the day will provide up-to-date insights on diagnosis, treatment, and long-term management, while highlighting unmet needs and setting future priorities for improving care. This event also offers a unique opportunity for UK-wide networking and collaboration.

Published: 11 months ago

By Beth Chesser

Published: 11 months ago

By Beth Chesser

Help Shape the Future of Neuroendocrine Cancer Research – Share Your Priorities Today 

Neuroendocrine Cancer UK and UKINETS are jointly leading a James Lind Alliance (JLA) Priority Setting Partnership (PSP) to identify the most important…

Published: 11 months ago

By Neuroendocrine Cancer UK

Published: 11 months ago

By Neuroendocrine Cancer UK

UKINETS

Inspiring Conversations and Exciting Announcements at This Year’s UK & Ireland Neuroendocrine Tumour Society (UKINETS) Conference  We were delighted to…

Published: 11 months ago

By Neuroendocrine Cancer UK

Published: 11 months ago

By Neuroendocrine Cancer UK

£100,000 Research Investment Announced to Improve the Future of Neuroendocrine Cancer Care

We are thrilled to share some exciting news: this year, Neuroendocrine Cancer UK will be investing £100,000 into new research, made possible thanks to the…

Published: 12 months ago

By Neuroendocrine Cancer UK

Published: 12 months ago

By Neuroendocrine Cancer UK

Glasgow 2025: the importance of patient support

It was fantastic to see so many of you join us at the Annual National Patient Education Event in Glasgow earlier this month.   We started the day with an…

Published: 12 months ago

By Neuroendocrine Cancer UK

Published: 12 months ago

By Neuroendocrine Cancer UK
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