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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

ENETs 2021 

The ENETs 2021 conference will open with a plenary lecture on immunotherapy in cancer and how to apply immunotherapy in NET and on subsequent days host a…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

INCA Announces New Research Patient Advocates

Neuroendocrine Cancer UK is delighted to announce that one of our Ambassadors, Kate Quirk, has just completed the first Research Patient Advocates…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Thames Valley Cancer Alliance Patient & Public involvement

Thames Valley Cancer Alliance Patient & Public involvement Thames Valley Cancer Alliance is working proactively to engage patients, families, and…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

NCUK Barriers to Diagnosis Survey

The purpose of the NCUK to Barriers Survey was to consolidate and add to previous national and global Neuroendocrine Cancer (NC)* patient experience…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

NEW TECHNOLOGY TO HELP IDENTIFY THOSE AT HIGH RISK FROM COVID-19

New predictive risk model to help clinicians identify adults with multiple risk factors that make them more vulnerable to COVID-19 Over 800,000 adults…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

NANETS’ Position Statement COVID-19 Vaccination for NEN patients

A growing body of evidence suggests that patients with cancer have an increased risk of severe COVID-19 infection and related complications. As such,…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

February Newsletter

Welcome to our newsletter! As you read through, you will see that there are multiple components to running a patient organisation. We are a ‘small but…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

At Home in Lockdown: Tips from Rareminds 

At Home in Lockdown:  Tips from Rareminds    We’ve all got used to the saying during lockdown that ‘we are all in the same storm, but not all in the same…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

Rapid Diagnostic Clinics (RDCs)

Rapid Diagnostic Clinics (RDCs) Rapid Diagnostic Centres (RDCs) are designed to speed up cancer diagnosis and support NHS ambitions to achieve earlier…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK
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