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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

CommNETs Study – Direct NETs

The launch DIRECT NETs – an international study that seeks to improve patient-centered treatment decision making, and we are supporting CommNETs in…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

SURUFATINIB IS A POTENTIAL NEW OPTION IN ADVANCED PANCREATIC NETS

The ESMO Virtual Congress 2020 is packed with an increasing number of clinical trials reported in endocrine and neuroendocrine tumours (NETs): promising…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

Natter Matters

Due to impact of COVID19 pandemic 2020, there have been restrictions on social gatherings – to maintain ongoing support through our groups, we have been,…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

UKINETS 18th Annual Conference – SAVE THE DATE –

Monday 30th November – Thursday 3rd December We are pleased to announce the UKI NETS annual conference will be held virtually with live content from 30…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

SCAN Healthcare Quality Evaluation at ESMO 2020

INCA is delighted to announce that the abstract SCAN Healthcare Quality Evaluation was accepted for e-poster presentation (display) at the #ESMO20 Virtual…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Cancer52 – Impact of COVID-19 on people with rare and less common cancers in England

About the survey Cancer52 ran an online survey of people with rare and less common cancers during June 2020. Respondents were recruited via member…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Kate Quirk, NCUK: Sharing Knowledge is Key

Kate Quirk is our Patient Support Coordinator, a Research Advocate for INCA (International Neuroendocrine Cancer Alliance) and Ambassador (Lung). She is…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

French patient-reported experience of diagnosis, management and burden of neuroendocrine tumors

Echoing earlier results from both INCA global and NCUK UK surveys, this study highlights the considerable burden experienced by patients living with…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Pheo Para Awareness Week

August 23-29, 2020 The Pheo Para Alliance Launches Inaugural Pheo Para Awareness Week, August 23 – 29, to Raise Awareness Internationally for Rare Disease…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot
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