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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Virtual World NEN Lives 2020

September 23 - 24 2020 Dear NENs Patients, Families, and Friends, We welcome you to the FIRST Virtual World NEN Lives 2020 Congress. During the congress…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Virtual NET Patient Education Day

Neuroendocrine Tumors | August 15, 2020 | 5:20pm Pre-Conference Session: What Is Nuclear Medicine/Radiation Safety John Sunderland, PhD The Role of…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19

The guidance for the clinically extremely vulnerable has been updated in line with what was announced on Monday 22 June. You are no longer advised to…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Dental Health

The Government has given the green light for dental practices to reopen in England For a dental practice to treat you, they will need fully compliant PPE,…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

July Newsletter

Hello! Welcome to our newsletter! As you read through, you will see that there are multiple components to running a patient organisation. We are a ‘small…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

Advances in Science : EURINE-ACT

A study, involving 14 international  Centres, and enrolling more than 2000 patients,  newly diagnosed with adrenal masses, over 6 years, has allowed…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

A Review of Interventional Radiology techniques in Neuroendocrine Cancer Liver Mets

Interventional radiology plays an important role in the management of patients with neuroendocrine cancer liver metastasis (NELM). Transarterial…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

COVID 19 and My Care

There is a voiced genuine concern regarding the huge impact the Covid-19 Pandemic has had, and will have, on healthcare for patients with cancer.   To…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

COVID-19 – Shielding Clinical Guidance Explainer

The UK Government has set out a roadmap for the clinically extremely vulnerable on the future of the shielding programme. For now, the guidance remains…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot
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