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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Jamie’s Neuroendocrine Cancer Story

On the 3rd August 2016 my life changed forever. For some reason it felt as though I couldn't digest my food. I increasingly felt unwell. That evening I…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation attends British Psychosocial Oncology Society Conference

Who we are, how we see ourselves - how we feel and think about our selves, our relationships, our community, and the world at large - all influence how we…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation Attends ‘Theranostics Is Here and Now’ Meeting

On the 20th March 2019 the NET Patient Foundation attended the ‘Theranostics is here and now’ meeting, arranged by the Royal Free Hospital and University…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Surprised by Beauty, Tom’s NET Story

On January 2, 2015, I had a life-changing experience: I almost died. I was suddenly hospitalized with internal bleeding caused by a neuroendocrine tumor…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation attends ENETs 16th Annual Conference

Catherine Bouvier, NPF's Chief Executive, attended the European Neuroendocrine Tumor Society 16th Annual Conference which was held in Barcelona on 6th-8th…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

The Patient Self-Referral Questionnaire

  Failing to enrol patients into clinical trials can dramatically delay the development of new treatments. Currently 80% of all clinical trials (not just…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Research priorities in NETs

The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure that…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NPF February Roundup

Read our monthly roundup.  February 2019. [npfButton size=“small” text="Click here to read our February roundup"…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

Living With an Uncommon Cancer Live Facebook Q&A

In the UK almost half of those diagnosed with cancer will be told they have a rare or uncommon type of cancer. It can be more difficult to find…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot
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