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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

NET/NEC Nurse Competency Framework Initiative

Delivery of high-quality care that produces better outcomes for patients needs a high-quality workforce: skilled and competent practitioners who are fit…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

National Cancer Research Institute’s work on Living With and Beyond Cancer

By 2030 four million people in the UK will be living with the long-term consequences of cancer, but currently there is very little research on the…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

A new route for NET Ambassadorship recently launched

"A fabulous account of Mark’s venture into the new patient involvement panel for NICE. Really worth a read and I am totally behind talking about the…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation Attends EURACAN Meeting

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation launches new campaign Faces of NETs

This World Cancer Day we're asking you to make your voice count for the Neuroendocrine Cancer community by joining our new Faces of NETs campaign.  Over…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation NET News Magazine

We're delighted to share with you our first edition of NET News Magazine. As you read through this magazine, you will see that there are multiple…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NPF holds a NET Patient Education Meeting in Manchester

NET Patient Foundation in association with The Christie Hospital's NET team held a dedicated NET Patient Education Meeting on Friday 25th January. There…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NPF and AMEND Visit ACC Research Team at Birmingham University

On Friday 18th January, NPF's Chief Executive, Catherine Bouvier, and AMEND'S CEO, Jo Grey, met the ACC Research Team led by Wiebke Arlt at Birmingham…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot

NET Patient Foundation attends Cancer52 All Member Meeting

NPF's Chief Executive, Catherine Bouvier, attended the Cancer52 All Member Meeting on 23rd January.  An interesting meeting with presentations from the…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot
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