Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Carole's Story Neuroendocrine Cancer Site: Pancreas Hospital: The Christie, Manchester Carole Shaw, also known as Carole Wickets, reflects on her journey with neuroendocrine cancer and the ...
Written by Cynthia, neuroendocrine cancer patient. Neuroendocrine cancer site: Pancreas. Hospital: The Christie, Manchester. In June 2021, I was diagnosed with an 11cm tumour on the ...
Story by: LisaNeuroendocrine cancer site: LungHospital: The Christie, Manchester I was diagnosed in Dec 2021 with a typical Lung NET and underwent surgery to remove my ...
Name: Jane Since my diagnosis seven years ago, after a long search for the reason for my pain, I have become a faithful diary writer, everything ...
Name: Alan Neuroendocrine Cancer Site: Pancreas Alan's story I'm a father with two adult daughters, married to Kate since 1995. ...
Hi. I’m Dougie, a 59-year-old retired GP from South Lincolnshire, though originally from Edinburgh. I had a sub-acute small bowel obstruction and underwent an ileal resection ...
That Fraudulent Feeling … The last time I put pen to paper was November 2021 when I wrote a blog about my decision to take early ...
https://youtu.be/7QFNMg_f0g0 Recorded November 2020. ...
But Debra, you look so well … Some of you will recall that I was diagnosed with Neuroendocrine Cancer in February 2021, with a primary site ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.