Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
I was a “typical boy” throughout my own education. I did as little as possible and hoped for the best. ...
Name: Kate Neuroendocrine Cancer site: Tail of pancreas and secondaries in the liver KATE'S STORY Hello, my name is Kate and I have been living with ...
For six years my life with Neuroendocrine Cancer has had a rhythm that has enabled me to live a positive and organised life. Last month, that ...
On the whole, travel should be fairly easy in everyday life, with the odd curveball thrown in here and there…. ...
You couldn’t write it … by Jane Dayus-Hinch Four weeks ago, I woke up with a headache, which is nothing new for me. I took a ...
Towards the end of 2022, we passed the milestone of ten years since my husband Ian was first diagnosed with Neuroendocrine Cancer. What a rollercoaster ride ...
I was diagnosed with my first Neuroendocrine Tumour (NET) in 1997, when I was just 24. It was in the tail of my Pancreas and was ...
A cancer diagnosis is a lot to get your mind round. It brings a whole new set of complexities to try to understand. Whilst at the ...
WHO WE WERE BEFORE A CANCER DIAGNOSIS AND WHO WE ARE NOW - THE FACE IN THE MIRROR Before life changed forever, before in fact everything ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.