From Diagnosis to Surgery: Nick’s Experience with Pancreatic Neuroendocrine Cancer

By: Leanne Talbot

Posted on: 1 year ago

Trigger Warning.

Please note that while some stories end on a positive note, others may depict the challenging and difficult road that many neuroendocrine cancer patients face.

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Name: Nick
Neuroendocrine Cancer Site: Pancreas
Hospital: London Bridge Hospital (Private)

Diagnosed: 2024

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Nick’s Story 

Reflection After Surgery

I’m writing this as a postscript nearly 10 weeks after my distal pancreatectomy and splenectomy, now that I’ve had time to pause and reflect. I thought it might be useful to share some takeaway points that might help others in the future. 

Diagnosis and Surgical Surprises

I had my operation at London Bridge Hospital, using my medical health insurance after my initial PET scan showed a single (assumed benign) tumour in my pancreas. However, once surgery commenced, it turned out there were 3 tumours, and a biopsy revealed that the 2 much smaller ones were secondaries, or metastases.  
There is a very small primary lurking somewhere in the duodenum area (classic Passaro’s Triangle, apparently, according to Prof Raj), but too small to easily find and remove so the plan is to scan every 6 months, and his view was I should outlive it but if it starts to misbehave then they’ll go back in, locate and remove it. Therefore, expect the unexpected. Even when there are fantastic people and science involved, there is still room for surprises. 

Surgery and Recovery

Surgery was open cut, and I have a cracking scar to show off now… my career as a male model is definitely over. 
A couple of people on the Facebook Support page gave very good advice pre-op in that you need to be as fit as you can to help overcome the gruelling first few weeks if you’re going to have as good a recovery as possible. I’ve always been active, but I made sure I conditioned my body in the gym so that what seem like simple tasks, such as lifting yourself up out of bed and getting out of chairs, are manageable, and you ensure you have the strength to do such simple tasks.  These things are quite daunting in those early days. 

Experience of Private Healthcare

I used my private medical cover to have the op at London Bridge Hospital, an amazing place full of brilliant and caring staff from the surgeons (Mr Parthi Srinivasan and Mr Prachalias), to the superb nursing team (nearly all from the Philippines, incidentally) who truly cared about the patient and made sure I had the attention and support at all times. I have no axe to grind about the NHS, but my personal experience was that going the private route ensured I recovered quicker and was able to return to normal life sooner, so if you have private health cover, do consider using it to your advantage. 

Returning to Fitness

I spent 11 days in hospital (couple of complications initially), but by day 4 the physio had me walking the corridors for 10-20 mins daily. Once home, the first week was tough, but on week 4, I resumed going to the gym daily (no weights first few weeks) and walking 6,000 steps and by week 6, I was back out cycling, doing 25 miles, albeit on some flat routes.  

Moving Forward with Positivity

I’m very happy with how things have gone.  It hasn’t been easy, but keeping a positive mindset and determination has been half the battle. I’m grateful for the advice other patients in the Neuroendocrine Cancer UK community shared, which proved useful in some of my decision-making, and, of course, my wife. Now I’m rid of the tumours (and most of my pancreas with just enough left to produce insulin for now), I feel a million times better than pre-op. 
Nick 
Written July 2025 
While Nick’s story highlights how private healthcare supported his personal recovery, it’s vital to remember that everyone diagnosed with neuroendocrine cancer should be referred to and managed by an accredited UK NHS NET Centre of Excellence. We believe access to specialist care is a basic right for every patient. 

Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.

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We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.

By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.

Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.

Please complete the form below to share your story.

A note about reading and listening to personal stories

Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.

Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.

Support and next steps

You do not have to face this alone. Support is here when you are ready.

Disclaimer

The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.


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