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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

NCUK 2020 Grant Winner

We are delighted to award the 2020 NCUK grant to Dr Marc Ooft, Consultant Histopathologist, Kings College Hospital. His research alongside the NET GeCIP…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

No deal Brexit could have detrimental impact for four million people in UK living with a rare disease

No deal Brexit could have detrimental impact for four million people in UK living with a rare disease Experts have warned that a ‘no deal’ Brexit will…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

NCUK update re Covid19 vaccine(s)

NCUK update re Covid19 vaccine(s) Please note : as with all aspects of care for those with Neuroendocrine Cancer, NCUK recommends discussion with your…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

The Galleri blood test

An innovative blood test that may spot more than 50 types of cancer will be piloted by the NHS in a world-leading programme, announced by NHS chief…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

Cancer52 Patient Survey December 2020

A HUGE thank you to all of you who responded to our COVID & My Care Survey earlier this year - the summary report was made available through our…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

Priorities on rare cancers’ policy in National Cancer Control Plans (NCCPs)

Rare Cancers - results of a study conducted within the EU Joint Action on Rare Cancers: to which degree rare cancers are addressed in national cancer…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

NCUK Christmas Card Appeal

Christmas Card Appeal It may not be December yet but the dark nights are here and I’ve definitely felt the warm glow of festive lights around the town. We…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK

Nutrizym22

In response to a number of queries about the availability of Nutrizym22 from Merck, we have now been able to clarify that Marketing Authorisations were…

Published: 6 years ago

By Leanne Talbot

Published: 6 years ago

By Leanne Talbot

NET Cancer Day: Make the world talk about earlier diagnosis of Neuroendocrine Cancer

November 10 is NET Cancer Day, an annual event created by the International Neuroendocrine Cancer Alliance (INCA) and supported by Neuroendocrine Cancer…

Published: 6 years ago

By Neuroendocrine Cancer UK

Published: 6 years ago

By Neuroendocrine Cancer UK
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