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Pancreatic Enzyme Replacement Therapy (PERT) Update 

Ongoing variability in the supply of pancreatic enzyme replacement therapy (PERT) — particularly Creon® 25,000iu capsules — has left some people struggling to obtain their prescription. We explain what manufacturers, the NHS and the Department of Health are doing, and where to turn for help.

Published: 3 weeks ago

By Leanne Talbot

Published: 3 weeks ago

By Leanne Talbot

Birmingham Patient Education Event

NET Patient Foundation was delighted to be invited to have a presence and talk at the recent Birmingham Centre of Excellence Patient Education Day.  It…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NPF attends European Endocrinology Conference (ECE) 2019

With over 3,700 delegates, from more than 90 countries, ECE 2019, held 18-21 May, was a busy and interesting conference. The aim of the conference was to…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NET Patient Foundation announces collaboration with Maggie’s Centres

We are delighted to announce our collaboration with Maggie’s Centres.  This collaborative partnership will enable us to further develop our NET Natter…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Sunflower Lanyard Scheme for Hidden Disabilities

London North Eastern Railway (LNER) has become the latest in a series of transport providers to introduce sunflower lanyards for those who have a hidden…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Cheshire Pressed Launch Charity T-shirt for NET Patient Foundation

A very special thank you to Helen and Cheshire Pressed for their amazing support in fundraising for NET Patient Foundation and raising awareness of…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

12th ENETs recognised Centre of Excellence in the UK

We are delighted to receive the news that we now have a 12th ENETs recognised Centre of Excellence in the UK.   “It’s a wonderful achievement for the team…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

NET Patient Foundation’s Lung Neuroendocrine Cancer Project

On the 9th May the NET Patient Foundation Lung Neuroendocrine Cancer Project kicked off with the first meeting with our patient and supporter advisory…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Blood mRNA Measurement (NETest) for Neuroendocrine Tumor Diagnosis of Image-Negative Liver Metastatic Disease

The Endocrine Society has accepted the NETest as a biomarker for microscopic liver disease (minimal residual disease) in neuroendocrine tumors for their…

Published: 7 years ago

By Leanne Talbot

Published: 7 years ago

By Leanne Talbot

Personal Independence Payment (PIP) Appeal

NET Patient Foundation has 5 key pillars of activity focused on improving the lives of those affected by Neuroendocrine Cancer : Support, Education,…

Published: 8 years ago

By Leanne Talbot

Published: 8 years ago

By Leanne Talbot
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