Supporting the

Neuroendocrine Cancer Community

NET Patient Foundation Attends ACRONET 2019

Jun 17, 2019

With over 200 delegates, from across the UK and Ireland, ACRONET 2019, held 6-7 June, was a busy and interesting educational event. 

This now annual event, sponsored by pharma, aims to bring together specialist NET and Endocrine nurses, and allied healthcare professionals, to share knowledge, skills and experience – to promote education and excellence in practice; ultimately benefiting the life of patients. 

The programme reflected common themes and issues raised within both the nursing and patient communities – the need for reliable, accurate information (for healthcare professionals and their patients), access to expert care and treatments, education and training and knowledgeable support – for both physical and mental health. 

Talks and sessions ranged from ‘Writing for Publication’, ‘Lab Tests and Interpretation’, ‘Carcinoid Heart Disease’, ‘Living with Chronic Disease’ and ‘Controversial Diets Explained’, with presentations from all disciplines including most importantly a patient. 

The key take home message was “COMMUNICATION; say what you mean and mean what you say – be honest, accurate, clear and consistent.”

NET Patient Foundation was present; Nikie, NPF Nurse, as a member of the programme development and chairing committee and Cathy, NPF’s CEO, as a speaker “Neuroendocrine Cancer – a holistic approach to care”.

We would like to thank Ipsen for the invitation and inclusion in this event. Thank you to those who gave feedback on the day for your comments and interest and to those who expressed an interest in further contact and collaboration – we look forward to future discussions and working together.