Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
I was diagnosed in May 2019 and can remember thinking “Ok, I think I know what I have ahead of me…” but unlike other cancers, Neuroendocrine ...
For any of you who have had the magic words ‘PRRT’ mentioned as part of your treatment & you are feeling apprehensive, I would like to ...
I suppose it all started with a Heart Attack at the end of March 2019. This has since been queried by the Oncologists, but the Cardiologists ...
Name: Chris Age: 36 Primary Site: Central right Lung Chris's Story Diagnosed in February 2022 after visiting a private GP after my NHS GP wouldn’t see ...
I’m Leanne, I’m 48 years old and I was diagnosed with Neuroendocrine Cancer in September 2019. My primary is in my rectum with metastases to my ...
Hello friends. My name is Graham Shankarji Hunt, I'm 73 years old and in retirement, I am a singer/songwriter by trade. I've been lucky with my ...
My Experiences With CAPTEM Chemotherapy and 10 Tips I was diagnosed with Lung Neuroendocrine cancer in February 2021. This was my second cancer diagnosis in less ...
We are all affected by cancer in some way at some point in our lives. I would be very grateful for any donation or support you ...
by Karen Edwards The last 6 months for me have been a rollercoaster of health and emotions. I have had IBS for years and it has ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.