Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Name: Paul Age: 55 Neuroendocrine Cancer Site: Pancreas Paul's story: I was struggling with various tummy issues and upper abdomen problems throughout 2017 and 2018. I ...
Name: Sally Neuroendocrine Cancer Site: Caecum Sally's Story: After feeling so tired and struggling with hot flushes for many years, I went to see my doctor. ...
Debra was 51 when she was diagnosed in February 2021 with a rare rectal primary and liver metastases. Her symptoms had started back in 2015 with ...
Everyone asks “How are you?” and the answer comes out automatically: “I’m fine.” Written by Alan and reproduced with thanks to Chris Lewis, this is an ...
I was diagnosed with two PNETs (Pancreatic NETs) at the age of 35, one at either end of my pancreas. I had been off work sick ...
As a hobby, I had been making short videos for my YouTube channel sharing my love of health, fitness, and the outdoors. However, I was diagnosed ...
Name: Mel Age: 74 Neuroendocrine Cancer Site: Primary in bowel, secondary liver initially Mel's Story My name is Mel and I have neuroendocrine cancer which was ...
Kevin was diagnosed in early 2021 with a neuroendocrine tumour in his small intestine that had already spread to his liver, after going to A&E with ...
Name: Maxine Neuroendocrine Cancer Site: Small Bowel NOT THE LIFE WE PLANNED …. It was October 2015, and as I lay on the CT scanner bed, ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.