Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Karen was diagnosed in May 2024 after going into A&E in extreme abdominal pain. She explains how a specialist dietitian transformed her neuroendocrine cancer journey. ...
“Thanks for coming in. You have something called Neuroendocrine Cancer, we don’t treat that here- you will be referred to the Centre of Excellence… you know, ...
After being diagnosed with neuroendocrine cancer a little over 6 years ago, Leanne took a conscious decision that she was still going to pursue the things ...
Name: Alan - Ambassador Spotlight. - Alan is a valued member of our Manchester Patient Support Group, which meets every other month with patients who attend ...
It was the summer of 2021, his wife was pregnant with their second child and their first son had just turned one when Matthew began noticing ...
Name: Andrew Neuroendocrine Cancer Site: Small Bowel Diagnosed: October 2024 Neuroendocrine Cancer Hospital: Basingstoke and North Hampshire Hospital - Andrew's Story I work for a small ...
Name: Jon Neuroendocrine Cancer Site: Pancreas Diagnosed: 2017 - Jon's Story When I was diagnosed with neuroendocrine tumours in April 2017, I had already been trying ...
Name: Nick Neuroendocrine Cancer Site: Pancreas Hospital: London Bridge Hospital (Private) Diagnosed: 2024 - Nick's Story Reflection After Surgery I’m writing this as a postscript nearly ...
Name: Katie Neuroendocrine Cancer Site: Pancreas Neuroendocrine Cancer Hospital: Hammersmith Hospital, part of Imperial NHS Foundation Trust London - Katie's Story I was a ballet dancer ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.