Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Alan was diagnosed with a pancreatic neuroendocrine tumour and is still working full time as a programme manager at Motorola. He writes about finding a way ...
Well, that was an interesting weekend. For the last 2 years I’ve been managing my blood glucose based on the Keep in Range protocol which means ...
Name: Chris Neuroendocrine Cancer Site: Lung Hospital: Royal Free We’re delighted to welcome Chris from Wiltshire, who has just joined our Neuroendocrine Cancer UK Ambassador team. ...
Name : Leanne Neuroendocrine Cancer Site: Primary tumour in my rectum and metastases in my liver and thyroid. Hospital : ...
Name: Tricia Hospital: The Royal Free - When my Professor told me that he would be recommending PRRT (Peptide Receptor Radionuclide Therapy) as the next step ...
Name : Carolyn Neuroendocrine Cancer Site: Bowel and secondary liver mets Hospital: Royal Free Hospital, and local. - Carolyn's Story: ...
Name: Terrie Neuroendocrine Cancer Site: Small Bowel with Liver Metastases Hospital: The Christie Hospital, Manchester - My name is Terrie, I’m 77 years old and have ...
Name: Davinya Neuroendocrine Cancer Site: Lung Hospital: The Christie Hospital, Manchester - Learning about my Lungs I thought some of you would like to hear my ...
Autism is a spectrum, so no two autistic people experience it the same way. One person’s account of being autistic while living with neuroendocrine cancer, and ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.