Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
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Everyone’s experience of neuroendocrine cancer is different. Here, patients share their personal stories, offering insights into the challenges, emotions and everyday realities of living with neuroendocrine cancer.
Eleanor was 46 when a pancreatic NET was found in 2017. Told surgery would be too risky at The Royal Marsden, she was referred to King's ...
Katie was diagnosed in October 2015 with a pancreatic primary and went through a distal pancreatectomy, liver ablation, PRRT and more before transplant was ever discussed. ...
Name: Lesley Neuroendocrine Cancer Site: Bowel, Liver Hospital: Royal Free - My name is Lesley Porch and I currently work full-time as a secondary school support ...
My name is Lesley Porch and I currently work full-time as a secondary school support teacher and pastoral care supervisor. ...
Name: Angela Neuroendocrine Cancer Site: Ileal, small intestine with metastases in my liver, ovary, and pelvic nodes. Hospital: Southampton - Cancer has been part of my ...
A ‘carer’s’ experience is not the same as a patient's. It can’t be. But the fallout from the stress and anxiety can be just as overwhelming. ...
Name: Gary Neuroendocrine Cancer Site: Small Bowel Neuroendocrine Tumours with Liver Metastases. Hospital: Southampton General Hospital - - My name is Gary and I was diagnosed ...
Name: Carolyn Neuroendocrine Cancer Site: Bowel Hospital: The Royal Free - Carolyn's Story My name is Carolyn Evans, and in August 2005, I was in hospital ...
Name: Caroline Neuroendocrine Cancer Site: Colon. - My name is Caroline Griffiths and I’m 56 years old. I live in Port Talbot with my husband and ...
Name: Michelle Neuroendocrine Cancer Site: Primary: Adrenal gland with secondaries in lungs, liver, and lymph nodes behind the aorta - - Michelle's Story I have suffered ...
Name: Marie Martin Neuroendocrine Cancer Site: Pancreatic Primary - I’d rather not be writing this story but it might help others - it's hard to find ...
Everyone’s experience of neuroendocrine cancer is different. Take your time, and engage with the stories in whatever way feels right for you.
Sharing what you’re going through with others can be incredibly powerful, helping others to feel less alone, find hope and reassurance, and feel more confident and empowered.
If you have a story to share, we would love to hear from you.
We’re always looking for people to share their experiences with Neuroendocrine Cancer. Whether you have the personal experience yourself or through a family member or friend, we use stories on our website, on social media, in our patient information, and on occasion, in the press.
By raising awareness of Neuroendocrine Cancer (NC), we can reach and help more people. Personal stories highlight many relevant aspects of living with NC.
Experiences provide insights that support the education of healthcare professionals, raise awareness of possible signs and symptoms pre diagnosis, raise awareness of NC in the general public arena and encourage and inspire other people who have just started their pathway.
Please complete the form below to share your story.
Everyone’s experience of neuroendocrine cancer is different. Some stories may offer hope and reassurance, while others may be difficult or upsetting to read or hear. Take your time, and engage with the stories in whatever way feels right for you.
Remember that treatments and outcomes vary from person to person. These stories offer personal perspectives and support, but should not replace advice from your own healthcare team. If something raises questions about your care, speak to your doctor or clinical nurse specialist.
You do not have to face this alone. Support is here when you are ready.
The stories and opinions shared here reflect the personal experiences and views of individual contributors and do not necessarily reflect those of Neuroendocrine Cancer UK. They are provided for information and support and are not a substitute for professional medical advice.